References

  1. Modell B, Darlinson M. Global epidemiology of haemoglobin disorders and derived service indicators. Bull World Health Organ. 2008; 86(6): 480-487. PubMed | Google Scholar

  2. World Health Organization. Sickle cell anaemia. Agenda item 11.4. In: 59th World Health Assembly, 27 May 2006. WHA59.20. Avalaible from: http:// www.who.int/gb/ebwha/pdf_files/WHA59-REC1/e/WHA59_2006_REC1 consulté le 10février 2012.

  3. Tshilolo L, Kafando E, Sawadogo M, Cotton F, Vertongen F, Ferster A, Gulbis B. Neonatal screening and clinical care programmes for sickle cell disorders in sub-saharan Africa: lessons from pilot studies. Public Health. 2008; 122(9): 933-941. PubMed | Google Scholar

  4. Okwi AL, Byarugaba W, Ndugwa CM, Parkes A, Ocaido M, Tumwine JK. An up-date on the prevalence of sickle cell trait in Eastern and Western Uganda. BMC Blood Disord. 2010; 10:5. PubMed | Google Scholar

  5. Tshilolo L, Aissi LM, Lukusa D, Kinsiama C, Wembonyama S, Gulbis B, Vertongen F. Neonatal screening for sickle cell anemia in the Democratic Republic of the Congo: experience from a pioneer project on 31204 newborns. J Clin Pathol. 2009; 62(1): 35-38. PubMed | Google Scholar

  6. Agasa B, Bosunga K, Opara A, Tshilumba K, Dupont E, Vertongen F, Cotton F, Gulbis B. Prevalence of sickle cell disease of the Democratic Republic of Congo: What impact on transfusion policy? Transfus Med. 2010; 20(1): 62-65. PubMed | Google Scholar

  7. De Montalembert M, Tshilolo L. (Is therapeutic progress in the management of sickle cell disease applicable in sub-Saharan Africa? Med Trop (Mars). 2007; 67(6): 612-616. PubMed | Google Scholar

  8. Wembonyama S, Mpaka S, Tshilolo L. Medicine and health in the Democratic Republic of Congo: from Independence to the Third Republic. Med Trop (Mars). 2007; 67(5): 447-457. PubMed | Google Scholar

  9. Driscoll MC. Sickle cell disease. Pediatr Rev. 2007; 28(7): 259-268. PubMed | Google Scholar

  10. Tshilolo LM, Mukendi RK, Wembonyama SO. Blood transfusion rate in Congolese patients with sickle cell anemia. Indian J Pediatr. 2007; 74(8): 735-738. PubMed | Google Scholar

  11. Tshilolo L, Mukendi R, Girot R. Sickle cell anemia in the south of Zaire: study of two series of 251 and 340 patients followed-up 1988-1992. Arch Pediatr. 1996; 3(2): 104-1. PubMed | Google Scholar

  12. Grosse SD, Odame I, Atrash HK, Amendah DD, Piel FB, Williams TN. Sickle cell disease in Africa: A neglected cause of early childhood mortality. Am J Prev Med. 2011; 41(6 Suppl 4): S398-405. PubMed | Google Scholar

  13. Longo-Mbenza B, Ngiyulu R, Kizunda P, Kaluila M, Bikangi N. Gallbladder disease in young Congolese with sickle cell anemia: an ultrasound survey. J Trop Pediatr. 2004; 50(2): 73-77. PubMed | Google Scholar

  14. Kaimbo Wa Kaimbo D, Ngiyulu Makuala R, Dralands L, Missotten L. Ocular findings in children with homozygous sickle cell disease in the Democratic Republic of Congo. Bull Soc Belge Ophtalmol. 2000; 275: 27-30. PubMed | Google Scholar

  15. Mabiala-Babela JR, Massamba A, Tsiba JB, Moulongo JG, Nzingoula S, Senga P. Body composition in Negro African children suffering from sickle cell disease: a mixed cross-sectional longitudinal study in Brazzaville, Congo. Bull Soc Pathol Exot. 2005; 98(5): 394-399. PubMed | Google Scholar

  16. Hiernaux J. Anthropometric differences between sicklers and nonsicklers in Zairian adults. Hum Hered. 1979; 29(2): 95-99. PubMed | Google Scholar

  17. Babela JR, Nzingoula S, Senga P. Sickle-cell crisis in the child and teenager in Brazzaville, Congo: a retrospective study of 587 cases. Bull Soc Pathol Exot. 2005; 98(5): 365-370. PubMed | Google Scholar

  18. Diagne I, Diagne-Gueye ND, Signate-Sy H, Camara B, Lopez-Sall P, Diack-Mbaye A, Sarr M, Ba M, Sow HD, Kuakuvi N. [Management of children with sickle cell disease in Africa: experience in a cohort of children at the Royal Albert Hospital in Dakar]. Med Trop (Mars). 2003; 63(4-5): 513-520. PubMed | Google Scholar

  19. Elion J, Laurance S, Lapouméroulie C. Pathophysiology of sickle cell disease. Med Trop (Mars). 2010; 70(5-6): 454-458. PubMed | Google Scholar

  20. Kizito ME, Mworozi E, Ndugwa C, Serjeant GR. Bacteraemia in homozygous sickle cell disease in Africa: is pneumococcal prophylaxis justified? Arch Dis Child. 2007; 92(1): 21-23. PubMed | Google Scholar

  21. Lê PQ, Ferster A, Cotton F, Vertongen F, Vermylen C, Vanderfaeillie A, Dedeken L, Heijmans C, Ketelslegers O, Dresse MF, Gulbis B. Sickle cell disease from Africa to Belgium, from neonatal screening to clinical management. Med Trop (Mars). 2010; 70(5-6): 467-470. PubMed | Google Scholar

  22. Ohaeri JU, Shokunbi WA. Attitudes and beliefs of relatives of patients with sickle cell disease. East Afr Med J. 2001; 78(4): 174-179. PubMed | Google Scholar

  23. Tunde-Anyinmode MF. Psychosocial impact of sickle cell disease on mothers of affected children seen at University of Ilorin Teaching Hospital, Ilorin, Nigeria. East Afr Med J. 2007; 84(9): 410-419. PubMed | Google Scholar

  24. Odame I. Developing a global agenda for sickle cell disease: report of an international symposium and workshop in Cotonou, Republic of Benin. Am J Prev Med. 2010 Apr; 38(4 Suppl): S571-575. PubMed | Google Scholar

  25. Palermo TM, Riley CA, Mitchell BA. Daily functioning and quality of life in children with sickle cell disease pain: relationship with family and neighborhood socioeconomic distress. J Pain. 2008; 9(9): 833-840. PubMed | Google Scholar

  26. Simon K, Barakat LP, Patterson CA, Dampier C. Symptoms of depression and anxiety in adolescents with sickle cell disease: the role of intrapersonal characteristics and stress processing variables. Child Psychiatry Hum Dev. 2009; 40(2): 317-330. PubMed | Google Scholar

  27. Marsh VM, Kamuya DM, Molyneux SS. 'All her children are born that way': gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya. Ethn Health. 2011; 16(4-5): 343-59. PubMed | Google Scholar

  28. Hamza R, Fattoum S, Péchevis M, Cook J, Girot R. Contributions to the sociologic analysis of the impact of sickle cell disease on families from Northen Tunisia. Sante Publique. 1999; 11(3): 297-315. PubMed | Google Scholar

  29. Mambu Nyangi Mondo T, Malengreau M, Kayembe Kalambayi P, Lapika Dimomfu B. Delays in seeking and getting care, in seriously ill women of childbearing age in Kinshasa. Rev Epidemiol Sante Publique. 2010; 58(3): 189-196. PubMed | Google Scholar

  30. Sabuni LP. Dilemma with the local perception of causes of illnesses in central Africa: muted concept but prevalence in every day life. Qual Health Res. 2007; 17 (9): 1280-1291. PubMed | Google Scholar

  31. Odame I, Kulkarni R, Ohene-Frempong K. Concerted global effort to combat sickle cell disease: the first global congress on sickle cell disease in Accra, Ghana. Am J Prev Med. 2011; 41(6 Suppl 4): S417-421. PubMed | Google Scholar

  32. Graff JC, Hankins JS, Hardy BT, Hall HR, Roberts RJ, Neely-Barnes SL. Exploring parent-sibling communication in families of children with sickle cell disease. Issues Compr Pediatr Nurs. 2010; 33(2): 101-23. PubMed | Google Scholar

  33. Gomes LM, Vieira MM, Reis TC, Barbosa TL, Caldeira AP. Knowledge of family health program practitioners in Brazil about sickle cell disease: a descriptive, cross-sectional study. BMC Fam Pract. 2011; 12: 89. PubMed | Google Scholar

  34. Serjeant GR. One hundred years of sickle cell disease. Br J Haematol. 2010; 151(5): 425-429. PubMed | Google Scholar